Welcome to the PRIME study website!
PRIME stands for PRenatal screening Informed-decision Making Evaluations.
Description of the study
Prenatal screening, such as non-invasive
prenatal test (NIPT) and structural ultrasound scans, allow expectant parents
to learn more about the (expected) health of their unborn child. Preferably,
the pregnant woman chooses together with her decisional partner(s) whether this
prenatal screening is carried through. The decisional partner can be for
instance the co-parent, a family member or friend. At this point it is unclear
how decisional partners reach a joint decision, something we call the joint
informed decision-making (J-IDM) process. We investigate what are the important
factors for joint informed decision-making in prenatal screening. We ask
pregnant women and their decisional partners, prenatal care providers and
scientists about their experiences and opinions. This information is combined
in a joint decision questionnaire. We then test the quality (validity) of the
questionnaire. This project provides insight into the process and consequences
of joint decision-making and may give possible starting points for improving
joint decision processes.